Division on Visual Impairments

DVI Quarterly Volume 59(4)

A quarterly newsletter from the Council for Exceptional Children's Division on Visual Impairments containing practitioner tips for Teachers of Students with Visual Impairments, Certified Orientation and Mobility Specialists, and other professionals.

Issue link: http://dvi.uberflip.com/i/374077

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Page 25 of 59

; Lorem Ipsum Dolor Spring 2016 6 Do you know parents of children with albinism? Please pass along this information asking parents to share their experiences and perspectives of medical and educational services. Parent Experiences and Perspectives on Medical and Educational Services for their Children with Albinism Dear Parents, We are conducting a study that focuses on parents' experiences with medical and educational services for their children who have albinism. What we learn from parents will be used to identify practices that work and those that need to be improved. We will share the results with NOAH and with other parent and professional groups. Please complete a questionnaire online at: www.surveymonkey.com/s/cchmcalbinismsurvey or we can provide a paper copy in print or in an alternate format, or you may complete it by telephone. No identifiable information will be requested on the Parent Questionnaire. If you have questions about the study, would like additional information, or to request assistance in completing the parent questionnaire, please contact either of us. Thank you for your help with this study. Anne L. Corn, Ed.D. Kelly Lusk, Ph.D. Research Professor (Volunteer) Assistant Professor Department of Ophthalmology Division of Pediatric Ophthalmology University of Cincinnati Cincinnati Children's Hospital phone: 512-371-9945 Medical Center Anne123C@gmail.com phone: 513-636-4416 kelly.lusk@cchmc.org Note: This study has been approved by the National Organization for Albinism and Hypigmentation (NOAH) and the Institutional Review Board (for human subjects) at Cincinnati Children's Hospital Medical Center. 26

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